Elinay Nature

Chronically Awesome

chronicallyinvisible:

I was thinking the other day that chronic illness sufferers are unbelievably good at coping because we really just have to be. We’ve been put into a situation where we have no choice but to simply carry on and manage. We may rarely be okay, but we cope, and there’s a lot to be said for that. 

(via arthritis-girl)

SPOONIE QUESTIONNAIRE

  • 1:

    what have you been diagnosed with, (and possibly self diagnosed with)?

  • 2:

    what will you tend to do at nights, when you can't sleep?

  • 3:

    worst experience/side effects of a medication?

  • 4:

    how has your condition impacted your mental health?

  • 5:

    describe your social life

  • 6:

    hardest thing to do when you are flaring?

  • 7:

    your worries for the future?

  • 8:

    favourite comfort food?

  • 9:

    tell us a valuable lesson you have learnt, through being unwell?

  • 10:

    name 3 things that you miss, taken from health limitations?

  • 11:

    how old were you when you started noticing symptoms?

  • 12:

    biggest injustice about living with a chronic illness?

  • 13:

    worst advice you have been given about your health?

  • 14:

    what items, related to illness, could you not cope without?

  • 15:

    can you remember being pain free?

  • 16:

    do you know anyone in real life who shares your condition?

  • 17:

    one symptom you would love not to have?

  • 18:

    lovely things said to you and something ignorant/negative, about being sick?

  • 19:

    are your family supportive, or mostly ignorant to your suffering?

  • 20:

    describe the feeling after walking up/down stairs

  • 21:

    any natural supplements, powders or alternative treatments you would recommend others try?

  • 22:

    what is the biggest thing you would like people to understand about your illness?